Teen with Rare Genetic Disease gets into Politics

From BillingsGazette.com -- MEETEETSE - Kenneth Allen, 18, has wanted to be the president of the United States since he was in the fourth grade and is already knee deep in politics, having helped draft a bill that personally affects him and his family - a bill that calls for amendments to the Newborn Screening Bill.

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Kenneth, a Meeteetse High School student who suffers from a disease knows as phenylketonuria, a genetic disorder that inhibits the body from digesting the amino acid phenylalanine, is actively trying to amend legislation so that people living with PKU in Wyoming can get continued state assistance after the age of 18.

Radical change in diet

Living with PKU for Kenneth means that he radically has to modify his diet, much of which is supplemented with a metabolic formula that he receives through the Wyoming Department of Health. That formula costs around $100 per can, and Kenneth goes through about 16 cans per month. If Kenneth doesn't adhere to his strict diet he risks mental retardation and central nervous system problems. More...

Comments: The price that this teen and his family has to pay - both financially and emotionally - is more than most people could or should have to deal with when considering the extreme measures that must be taken to maintain health.  This is a good lesson on how we who don't have to deal with such a disease should take our health seriously, and not take it for granted. It should be something we treasure, rather than the indulgences we partake in with the many fattening and unhealthy foods and drinks that we choose over the fruits, vegetables, lean proteins, and water that should be a part of our everyday diet. Don't wait to start living healthy and free from the burdens that being overweight and unhealthy causes to you and your family.

The Health & Wellness Institute, DC PC